Worcester Research and Publications

SEARCH EPRINTS:

USER PANEL:

Registered Users - Log in using your University of Worcester ID and Password to submit items to the repository.

ABOUT THE COLLECTION:

WRaP is a collection of research papers and university publications. It presents the academic and creative work of the university. You are welcome to look for and obtain items of interest and make contact with the authors and creators.

CONTACT DETAILS:

All correspondence about WRaP should be sent to the Repository Manager.

A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease

Lists

Tools

Muse, Kate ORCID: https://orcid.org/0000-0001-5824-1841, Johnson, E. and David, A.L. (2021) A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease. International Journal of Environmental Research and Public Health, 18 (15). p. 8038. ISSN Online: 1660-4601,

Preview

Text
ijerph-18-08038-v2.pdf - Published Version
Available under License Creative Commons Attribution.
Download (1MB) | Preview

Official URL: https://www.mdpi.com/1660-4601/18/15/8038

Abstract

Inflammatory bowel disease (IBD) consists of Crohn’s disease and ulcerative colitis, chronic conditions involving inflammation and ulceration of the gastrointestinal tract. Individuals with IBD may be susceptible to experiencing health-related stigma: experienced, perceived, or internalised social exclusion, rejection, blame, or devaluation resulting from negative social judgements based on the disease. This qualitative research synthesis draws together findings from 38 studies describing lived experiences to develop a unified interpretative account of the experience of stigma in IBD. Analysis developed two categories: ‘The IBD journey’ explores the dynamic ways in which having IBD impacted on individuals’ self-identity and ‘a need to be understood’ examines the tension between wanting to be understood whilst feeling their true experiences needed to be hidden from or were misjudged by the social sphere. The overarching concept ‘feeling of otherness’ highlights that, rather than a static, binary experience, individuals moved across a continuum ranging from the excluding experience of feeling stigmatised and othered, to the inclusive experience of integration. Individuals fluctuated along this continuum across different physical, social, and health contexts. Psychological adjustment to IBD, drawing on experience of adaptive coping, and reconnecting with valued others through illness disclosure strengthened stigma resistance during more challenging times

Item Type:	Article
Additional Information:	Copyright: © 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https:// creativecommons.org/licenses/by/ 4.0/). A pdf file of this article is available to download from this WRaP record.
Uncontrolled Discrete Keywords:	stigma, inflammatory bowel disease, colitis;, ulcerative, Crohn’s disease, meta-synthesis, patient experiences, qualitative research
Divisions:	College of Business, Psychology and Sport > School of Psychology
Related URLs:	https://www.mdpi.com/journal/ijerph
Copyright Info:	Open Access article
Depositing User:	Kate Muse
Date Deposited:	14 Sep 2021 08:32
Last Modified:	14 Sep 2021 09:29
URI:	https://eprints.worc.ac.uk/id/eprint/11339

Actions (login required)

View Item

Altmetric

CORE (COnnecting REpositories)

© University of Worcester Henwick Grove, WR2 6AJ Tel: 01905 855000 | Materials in WRaP are protected by copyright and other intellectual property rights. By using WRaP you agree to abide by UK copyright laws.

Worcester Research and Publications is powered by EPrints 3 which is developed by the School of Electronics and Computer Science at the University of Southampton. More information and software credits.