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Together in later life: How extra care housing can support couples affected by dementia

Oatley, Rebecca and Atkinson, Teresa ORCID logoORCID: https://orcid.org/0000-0003-2020-7239 (2025) Together in later life: How extra care housing can support couples affected by dementia. Housing Care & Support, AOP. pp. 1-13. ISSN Online ISSN 2042-8375

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Abstract

Purpose
This paper presents insights into how extra care housing (ECH) can support couples, where at least one partner is living with dementia. ECH is a model of housing with flexible care and support that supports older people to live independently. Couples are enabled to continue to live together in a self-contained flat or apartment with additional support for either or both parties as required.
Design
The paper reports on findings from a large study of living with dementia in ECH (Anonymous) that involved qualitative interviews with ECH residents affected by dementia, ECH staff, and adult social care professionals were conducted across 8 ECH schemes in England.
Findings
Data offer insight into how ECH can support couples might navigate their relationship, maintain a sense of togetherness, and adapt to the challenges posed by changing care and support needs and cognitive decline.
Originality/value
This paper provides novel insights into the living experiences of couples residing in ECH where at least one partner is living with dementia. Couples’ experiences in ECH have been little considered in research thus far.
Research limitations/implications
Findings here are based on a small sample with limited diversity, which is not claimed to be representative. Participants were identified by gatekeepers at each research site, which may have presented some selection bias.

Item Type: Article
Additional Information:

oatleyr3@cardiff.ac.uk

Uncontrolled Discrete Keywords: dementia, extra care housing, assisted living, couples, couplehood, unpaid care
Subjects: H Social Sciences > H Social Sciences (General)
Divisions: College of Health, Life and Environmental Sciences > School of Allied Health and Community
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Copyright Info: © 2025 Emerald Publishing Limited Licensed re-use rights only
Depositing User: Teresa Atkinson
Date Deposited: 11 Nov 2025 19:59
Last Modified: 04 Dec 2025 11:04
URI: https://eprints.worc.ac.uk/id/eprint/15711

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