Places of Farewell: a scoping review exploring factors influencing the choice of place of death for children when death is expected.

Davis, Gilda ORCID: https://orcid.org/0009-0005-3003-7896, Gaskin, Kerry ORCID: https://orcid.org/0000-0002-1179-4921, Molnár, Győző ORCID: https://orcid.org/0000-0003-1732-5672 and Bentley, Jackie (2024) Places of Farewell: a scoping review exploring factors influencing the choice of place of death for children when death is expected. Comprehensive Child and Adolescent Nursing. pp. 1-19. ISSN Print: 2469-4193 Electronic: 2469-4207

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Abstract

Progression of ill health and death trajectories are different for children with a non-oncology diagnosis. As previous research has focused primarily on children with cancer diagnoses, this scoping review explored what factors influence the parent and/or child’s choice of place of death for a child with a non-oncological complex care condition, when death is expected. Eighteen papers were identified considering the preferred place of death. The findings were themed into 1. Diagnostic Factors; 2. Home Factors; 3. Socio-economic Factors; 4. Parent Factors. In conclusion, informed discussions with families that recognise the reason for, and the impact of their choices, are necessary not only for the preferred place of death, but also end of life care.

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