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‘Lost time’. Patients with Early Inflammatory/Rheumatoid Arthritis and their experiences of delays in Primary Care.

Chilton, F., Bradley, Eleanor ORCID: https://orcid.org/0000-0001-5877-2298 and Mitchell, Theresa (2021) ‘Lost time’. Patients with Early Inflammatory/Rheumatoid Arthritis and their experiences of delays in Primary Care. Musculoskeletal Care. pp. 1-9. ISSN Print: 1478-2189 Electronic:1557-0681

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Abstract

Background
Early referral forms a crucial part in early inflammatory/rheumatoid arthritis (EI/RA) recovery. Delayed decisions to refer can lead to severe incapacity and emotional distress for individuals and family and feelings of lost time. How patients with EI/RA experience early referral decisions in Primary Care is an under explored area and warrants further investigation.
Aim: To explore how patients newly diagnosed with EI/RA experienced their early contacts with Primary Care as they negotiated their journey through the referral process into secondary care.
Design and setting
Qualitative face to face interviews with newly diagnosed EI/RA patients
Methods: In-depth semi-structured interviews were conducted to explore patients’ experiences of referral from first symptoms to GP referral All participants were interviewed within two weeks of being diagnosed in Secondary Care. Data analysis was conducted using Interpretative Phenomenological Analysis (IPA).
Findings: All participants in this study described having experienced struggles with their navigation through Primary Care towards diagnosis and specialist EI/RA services. This struggle comprised 5 key elements: ‘Family persuasion, ‘Lack of continuity in care’, ‘Pushing for referral’, ‘Straining relationships’, ‘Lost time’.
Conclusion: The delays experienced by patients when attempting to reach an early referral decision in Primary Care cause frustration for those presenting with EI/RA, partly because they do not feel heard. There is a significant impact on patients and their families when referral to specialist care is delayed.

Item Type: Article
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The full-text can be accessed via the Official URL.
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
A pdf file of this article is available to download from this WRaP record.

Uncontrolled Discrete Keywords: Early Inflammatory, Rheumatoid Arthritis, Patient Experience, Delay, Primary Care
Subjects: R Medicine > RT Nursing
Divisions: College of Business, Psychology and Sport > School of Psychology
College of Health, Life and Environmental Sciences > School of Nursing and Midwifery
Related URLs:
Depositing User: Eleanor Bradley
Date Deposited: 26 Feb 2021 11:21
Last Modified: 14 Jul 2021 04:00
URI: https://eprints.worc.ac.uk/id/eprint/10239

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