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Richardson, Emma 
ORCID: https://orcid.org/0000-0001-7409-778X and Motl, R.W.
(2021)
'Kicking and Screaming' or 'Gracefully Conceding': Creative Nonfiction Stories of Aging with Multiple Sclerosis.
Qualitative Health Research.
ISSN Print: 1049-7323 Online: 1552-7557
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Abstract
Aging with multiple sclerosis (MS) is a complex phenomenon. Some individuals report physical and cognitive dysfunctions regarding these combined experiences, whereas others report perceived improvements in quality of life. Beyond this, little is known regarding how people make sense of, and come to embody, negative or positive experiences of MS. Thus, our objectives were to (i) explore how people make sense of aging with MS and (ii) present this in an artful, engaging, transformative way. To achieve this, we conducted forty semi-structured interviews with older adults who had MS, analyzed data using pluralistic narrative analyses, and presented result through two creative non-fictions. We detail our process of creating the non-fictions before presenting the different stories of aging with MS, namely ‘Kicking and Screaming’ and ‘Gracefully Conceding’. We then offer recommendations and implications for using these stories as knowledge translation devices, and further critique the limitations of these stories in practice.
| Item Type: | Article |
|---|---|
| Additional Information: | A pdf file of this article is available to download from this WRaP record. https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
| Uncontrolled Discrete Keywords: | aging, multiple sclerosis, experiences, qualitative, chronic illness, pluralistic analysis, creative non-fiction, United States |
| Divisions: | College of Business, Psychology and Sport > School of Sport and Exercise Science |
| Related URLs: | |
| Copyright Info: | Open Access article |
| Depositing User: | Emma Richardson |
| Date Deposited: | 07 Apr 2021 08:27 |
| Last Modified: | 17 May 2021 08:06 |
| URI: | https://eprints.worc.ac.uk/id/eprint/10358 |
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