University of Worcester Worcester Research and Publications

Costs of Caring for a Child with Cancer: a Questionnaire Survey.

Eiser, C. and Upton, Penney (2007) Costs of Caring for a Child with Cancer: a Questionnaire Survey. Child: Care, Health and Development, 33 (4). pp. 455-459. ISSN 0305-1862

Full text not available from this repository. (Request a copy)


Current therapies for childhood cancer have resulted in improved survival rates. However, this has been achieved at considerable price to families, with financial costs including additional expenditure and loss of earnings having been described. The impact of these extra costs
for UK families and the extent to which help from charities and government benefits is able to alleviate this is unknown.

Questionnaires concerning income, expenditure, employment and financial support were completed by 145 parents, recruited from three United Kingdom Children’s Cancer Study Group treatment centres.

Parents’ responses highlighted increased expenditure related mainly to travel to treatment centres. The majority of families (55%) had spent between £50–100 in the past week over and above pre-illness expenditure, with a further 18% spending more than £100. Many parents (mainly mothers) had either given up or reduced outside employment in order to care for their child and this was associated with further financial problems for 42.7% of families. Despite help from charities and government benefits for the majority of families, extra costs were associated with money worries for
68.3% of families.

Although families are offered timely information about their entitlement to benefits,financial problems are incurred by families of a child with cancer partly because legislation prevents benefits being claimed for the first 3 months of a child’s illness – the time when expenses are still at
their highest. Furthermore, because benefits are backdated only to the point at which the claim was made, families do not recoup all their costs. Waiving of the 84-day wait period for children undergoing chemotherapy and radiotherapy, and the introduction of weekly bridging payments while a Disability Living Allowance claim is being assessed, would ameliorate this problem and so improve the

Item Type: Article
Additional Information:

Staff and Students at the University of Worcester can access the full-text of this item via the Get it from ILS service. External users should check availability with their local library or Interlibrary Requests Service

Uncontrolled Discrete Keywords: benefits, cost of illness, employment, financial support, paediatric cancer
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RJ Pediatrics
Divisions: College of Business, Psychology and Sport > School of Psychology
Depositing User: Charlotte Taylor
Date Deposited: 26 Feb 2013 10:55
Last Modified: 17 Jun 2020 16:58

Actions (login required)

View Item View Item
Worcester Research and Publications is powered by EPrints 3 which is developed by the School of Electronics and Computer Science at the University of Southampton. More information and software credits.