CHAT2App: Supporting Caregivers of Infants with Congenital Heart Disease

Bowers, Christopher ORCID: https://orcid.org/0000-0002-5076-512X, Tomlinson, Andrew ORCID: https://orcid.org/0000-0002-5740-7034, Gaskin, Kerry ORCID: https://orcid.org/0000-0002-1179-4921 and Wray, J. (2024) CHAT2App: Supporting Caregivers of Infants with Congenital Heart Disease. In: Extended Abstracts of the CHI Conference on Human Factors in Computing Systems (CHI EA ’24), May 11–16, 2024, Honolulu, HI, USA. Proceedings of the CHI Conference on Human Factors in Computing Systems (43). ACM, New York, pp. 1-9. ISBN 979-8-4007-0331-7/24/05 (In Press)

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Abstract

Caregivers of post-operative infants treated for Congenital Heart Disease (CHD) undergo significant stress and anxiety following initial discharge. We examine the development of a mobile application to support caregivers and health care practitioners (HCPs) at this important time. Reflexive thematic analysis of responses to semi-structured interviews with both caregivers and HCPs is used to identify some of the key design requirements with a focus on addressing barriers and challenges to effective at home post-operative care-giving. We identify the need for careful and nuanced consideration of stake-holder perspectives and the unique challenges that this raises. These include effective recording and reminders for observations, clear communication channels and targeted and actionable outcomes to identifying symptoms of concern. A resulting prototype application is presented along with lessons learnt and remaining challenges uncovered during the study.

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