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Article

van der Veer, S., Anderson, N., Finnigan, R. and Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741 (2024) Electronic Collection of Patient-Reported Outcomes to Improve Kidney Care: Benefits, Drawbacks, and Next Steps. Seminars in Nephrology (151552). pp. 1-11. ISSN Print: 0270-9295; Electronic: 1558-4488

Khan, N. ORCID logoORCID: https://orcid.org/0000-0003-4483-7390, Steeds, R., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Fabritz, L., Collis, P., Chua, W. ORCID logoORCID: https://orcid.org/0000-0002-6747-8813, Stubbs, C., Mehta, S., Sun, Y., Nulty, M., Kirkham, K. and Cotton, J. (2024) Pilot study to evaluate the use of remote patient monitoring to guide the timing of valve intervention in patients with severe asymptomatic aortic stenosis (APRAISE-AS): study protocol for a randomised controlled trial delivered in two tertiary cardiac centres in the UK. BMJ Open, 14 (086587). pp. 1-8. ISSN Online: 2044-6055 Print: ISSN 2044-6055

McMullan, C. ORCID logoORCID: https://orcid.org/0000-0002-0878-1513, Retzer, A. ORCID logoORCID: https://orcid.org/0000-0002-4156-8386, Hughes, S.E. ORCID logoORCID: https://orcid.org/0000-0001-5656-1198, Lee Aiyegbusi, O. ORCID logoORCID: https://orcid.org/0000-0001-9122-8251, Bathurst, C., Boyd, A., Coleman, J. ORCID logoORCID: https://orcid.org/0000-0002-7512-5153, Haf Davies, E., Denniston, A.K. ORCID logoORCID: https://orcid.org/0000-0001-7849-0087, Dunster, H., Frost, C., Harding, R. ORCID logoORCID: https://orcid.org/0000-0002-3063-3525, Hunn, A., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Malpass, R., McNamara, G., Mitchell, S.A., Mittal, S., Newsome, P. ORCID logoORCID: https://orcid.org/0000-0001-6085-3652, Price, G., Rowe, A., van Reil, W., Walker, A., Wilson, R. and Calvert, M.J. ORCID logoORCID: https://orcid.org/0000-0002-1856-837X (2023) Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial. Journal of Patient-Reported Outcomes, 7 (1). ISSN Electronic: 2509-8020

Anderson, N.E., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, McMullan, C., Cockwell, P., Lee Aiyegbusi, O., Verdi, R. and Calvert, M. (2023) Global use of electronic patient-reported outcome systems in nephrology: a mixed methods study. BMJ Open, 13 (7). ISSN Electronic: 2044-6055

Anderson, N. ORCID logoORCID: https://orcid.org/0000-0002-0614-3198, Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, McMullan, C., Cockwell, P., Aiyegbusi, O., Verdi, R. and Calvert, M. ORCID logoORCID: https://orcid.org/0000-0002-1856-837X (2022) Electronic patient-reported outcomes in chronic kidney disease. Nature Reviews Nephrology, 18 (12). pp. 739-740. ISSN 1759-5061 (print); 1759-507X (web)

Brundage, M. D., Crossnohere, N. L., O'Donnell, J., Cruz Rivera, S., Wilson, R., Wu, A.W., David, M., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Reeve, B.B., Gilbert, A., Chen, R. C., Calvert, M. J. and Snyder, C. (2022) Listening to the patient voice adds value to cancer clinical trials. Journal of the National Cancer Institute, 114 (10). pp. 1323-1332. ISSN 1460-2105

Fletcher, B. R., Damery, S., Aiyegbusi, O. L., Anderson, N., Calvert, M., Cockwell, P., Ferguson, J., Horton, M., Paap, M. C. S., Sidey-Gibbons, C., Slade, A., Turner, N. and Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741 (2022) Symptom burden and health-related quality of life in chronic kidney disease: A global systematic review and meta-analysis. PLOS Medicine, 19 (4). e1003954. ISSN 1549-1676 (online)

Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Anderson, N., Bishop, J., Bissell, A., Brettell, E., Calvert, M., Chadburn, M., Cockwell, P., Dutton, M., Eddington, H., Forster, E., Hadley, G., Ives, N. J., Jackson, L. J., O'Brien, S., Price, G., Sharpe, K., Stringer, S., Verdo, R., Waters, J. and Wilcockson, A. (2022) Results of a pilot feasibility randomised controlled trial exploring the use of an electronic patient-reported outcome measure in the management of UK patients with advanced chronic kidney disease. BMJ Open, 12 (e05061). ISSN Online: 2044-6055

Bhachu, H. K., Fenton, A., Cockwell, P., Aiyegbusi, O., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741 and Calvert, M. (2022) Use of the kidney failure risk equation to inform clinical care of patients with chronic kidney disease: a mixed-methods systematic review. BMJ Open, 12 (1). e055572. ISSN Online: 2044-6055 Print: ISSN 2044-6055

Grove, B.E., Schougaard, L.M.V., Ivarsen, P.R., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Henrik, N.H. and de Thurah, A. (2021) Patient-reported outcome measures for clinical decision-making in outpatient follow-up: validity and reliability of a renal disease questionnaire. Journal of Patient-Reported Outcomes, 5 (1). p. 107. ISSN 2509-8020

Anderson, N.E., McMullan, C., Calvert, M., Dutton, M., Cockwell, P., Aiyegbusi, O.L. and Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741 (2021) Using patient-reported outcome measures during the management of patients with end-stage kidney disease requiring treatment with haemodialysis (PROM-HD): a qualitative study. BMJ Open, 11 (8). e052629. ISSN Online: 2044-6055

Bhachu, H.K., Cockwell, P., Subramanian, A., Adderley, N.J., Gokhale, K., Fenton, A., Kyte, Derek, Nirantharakumar, K. and Calvert, M. (2021) Impact of Using Risk-Based Stratification on Referral of Patients With Chronic Kidney Disease From Primary Care to Specialist Care in the United Kingdom. Kidney International Reports, 6 (8). pp. 2189-2199. ISSN 2468-0249

Retzer, A., Calvert, M., Ahmed, K., Keeley, T., Armes, J., Brown, J.M., Calman, L., Gavin, A., Glaser, A.W., Greenfield, D.M., Lanceley, A., Taylor, R.M., Velikova, G., Brundage, M., Efficace, F., Mercieca-Bebber, R., King, M.T. and Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741 (2021) International perspectives on suboptimal patient-reported outcome trial design and reporting in cancer clinical trials: A qualitative study. Cancer Medicine. ISSN Online: 2045-7634

Snyder, C., Gilbert, A., Moher, D., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Daniels, E., King, M., Calvert, M., Chen, R.C. and Brundage, M. (2021) 'Recommendations for including or reviewing patient-reported outcome endpoints in grant applications'. BMJ, 375 (n1367). ISSN Print: 1759-2151 Online : 0959-8138

Slade, A.L., Ahmed, K., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Keeley, T., Armes, J., Brown, J.M., Calman, L., Gavin, A., Glaser, A.W., Greenfield, D.M., Lanceley, A., Taylor, R.M., Velikova, G., Turner, G. and Calvert, M.J. (2021) Systematic review of the use of translated patient-reported outcome measures in cancer trials. Trials, 22. p. 306. ISSN 1745-6215

Giesinger, J.M., Efficace, F., Aaronson, N., Calvert, M., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Cottone, F., Cella, D. and Gamper, E.M. (2021) Past and current practice of patient-reported outcome measurement in randomized cancer clinical trials: a systematic review. Value in Health, 24 (4). pp. 585-591. ISSN 1098-3015

Calvert, M., King, M., Mercieca-bebber, R., Aiyegbusi,, O.L., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Slade, A., Chan, A.W., Basch, E., Bell, J.A., Bennett, A.V., Bhatnagar, V., Blazeby, J., Bottomley, A., Brown, J., Campbell, L., Cappelleri, J.C., Draper, H., Dueck, A., Ells, C., Frank, L., Golub, R.M., Griebsch, I., Hayward, K., Hunn, A., King-Kallimanis, B.L., Martin, L., Mitchell, S., Morel, T., Nelson, L., Norquist, J.M., O'Connor, D., Palmer, M.J., Patrick, D., Price, G., Regnault, A., Retzer, A., Revicki, D., Scott, J., Stephens, R., Turner, G., Valakas, A., Velikova, G., Von Hildebrand,, M., Walker, A. and Wenzel, L. (2021) SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials. BMJ Open, 11 (6). e045105.. ISSN Online: 2044-6055

Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Anderson, N., Auti, R., Aiyegbusi, O.L., Bishop, J., Bissell, A., Brettell, E., Calvert, M., Chadburn, M., Cockwell, P., Dutton, M., Eddington, H., Forster, E., Hadley, G., Ives, N.J., Jackson, L., O'Brien, S., Price, G., Sharpe, K., Stringer, S., Stephenson, G., Verdi, R., Waters, J., Wilcockson, A. and Williams, J. (2020) 'Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease'. Journal of Patient-Reported Outcomes, 4 (55). ISSN 2509-8020

Rivera, S.C., McMullan, C., Jones, L., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Slade, A. and Calvert, M. (2020) 'The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders'. Journal of Patient-Reported Outcomes, 4 (51). ISSN 2509-8020

Aiyegbusi, O.L., Isa, F., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Pankhurst, T., Kerecuk, L., Ferguson, J., Lipkin, G. and Calvert, M. (2020) Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study. Health and Quality of Life Outcomes, 18 (1). p. 177. ISSN 1477-7525

McMullan, C., Retzer, A., Slade, A., Kyte, Derek ORCID logoORCID: https://orcid.org/0000-0002-7679-6741, Jones, L., Belli, A., Calvert, M. and Turner, G.M. (2020) Care providers' and patients' attitudes toward using electronic-patient reported outcomes to support patients with traumatic brain injury: a qualitative study (PRiORiTy). Brain Injury, 34 (6). pp. 723-731. ISSN Print : 0269-9052 Online : 1362-301X

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