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Aiyegbusi, O.L., Isa, F., Kyte, Derek ORCID: https://orcid.org/0000-0002-7679-6741, Pankhurst, T., Kerecuk, L., Ferguson, J., Lipkin, G. and Calvert, M. (2020) Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study. Health and Quality of Life Outcomes, 18 (1). p. 177. ISSN 1477-7525