University of Worcester Worcester Research and Publications

“Have I argued with my family this week?”: What questions do those with lived experience choose to monitor their bipolar disorder?

Gordon-Smith, Katherine ORCID:, Saunders, K.E.A., Savage, J., Craddock, N., Jones, I. and Jones, Lisa ORCID: (2021) “Have I argued with my family this week?”: What questions do those with lived experience choose to monitor their bipolar disorder? Journal of Affective Disorders, 281. pp. 918-925. ISSN Online: 0165-0327

Text (Author's accepted manuscript)
Gordon-Smith-etal-2020-Have-I-argued-with-my-family-this-week-what-questions-do-those-with-lived-experience-choose-to-monitor-their-bipolar-disorder.pdf - Accepted Version

Download (551kB) | Preview


Background Electronic self-report mood monitoring tools for individuals with bipolar disorder (BD) are rapidly emerging and predominately employ predefined symptom-based questions. Allowing individuals to additionally choose what they monitor in relation to their BD offers the unique opportunity to capture and gain a deeper insight into patient priorities in this context.
Methods In addition to monitoring mood symptoms with two standardised self-rated questionnaires, 308 individuals with BD participating in the Bipolar Disorder Research Network True Colours electronic mood-monitoring tool for research chose to create and complete additional personalised questions. A content analysis approach was used to analyse the content of these questions.
Results 35 categories were created based on the personalised questions with the most common being physical activity and exercise, anxiety and panic, sleep and coping/stress levels. The categories were grouped into six overarching themes 1) mental health; 2) behaviour and level of functioning; 3) physical wellbeing; 4) health behaviours; 5) active self-management; and, 6) interpersonal.
Limitations The average age of the sample was around 50 years meaning our findings may not be generalisable to younger individuals with BD.
Conclusions Aspects of BD important to patients in relation to longitudinal monitoring extend well beyond mood symptoms, highlighting the limitations of solely relying on standardised questions/mood rating scales based on symptoms primarily used for diagnosis. Additional symptoms and aspects of life not necessarily useful diagnostically for BD may be more important for individuals themselves to monitor and have more meaning in capturing their own experience of changes in BD severity.

Item Type: Article
Additional Information:

Staff and students at the University of Worcester can access the full-text of the online published article via the official URL. External users should check availability with their local library or Interlibrary Requests Service.

Uncontrolled Discrete Keywords: bipolar disorder, patient perspective, longitudinal, mood monitoring, online data collection
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Divisions: College of Health, Life and Environmental Sciences > School of Allied Health and Community
Related URLs:
Depositing User: Katherine Gordon-Smith
Date Deposited: 23 Nov 2020 09:59
Last Modified: 23 Mar 2022 10:12

Actions (login required)

View Item View Item
Worcester Research and Publications is powered by EPrints 3 which is developed by the School of Electronics and Computer Science at the University of Southampton. More information and software credits.