University of Worcester Worcester Research and Publications

Family Relationships and Dementia: a Synthesis of Qualitative Research Including the Person With Dementia

La Fontaine, Jenny and Oyebode, J.R. (2014) Family Relationships and Dementia: a Synthesis of Qualitative Research Including the Person With Dementia. Ageing & Society, 34 (7). pp. 1243-1272. ISSN Print: 0144-686X Online: 1469-1779

Full text not available from this repository. (Request a copy)


Family relationships are important for wellbeing across the lifecourse and are known to be important for people living with dementia, bringing benefits to self-esteem and identity, as well as providing support for people living at home. Recent research has explored the impact of dementia upon relationships. Much of this research is qualitative in nature and rarely included in systematic reviews, however, it has the potential to provide significant contributions to understanding the interplay between family relationships and dementia and to inform interventions. A systematic synthesis of qualitative research concerning the impact of dementia upon family relationships was undertaken, using thematic synthesis. Eleven articles were reviewed, which address the perspectives of people living with dementia and their spouse and/or adult children. The aims of this review are to illuminate what is currently known about the reciprocal influences between family relationships and dementia from the perspectives of the family (including the person with dementia); and to consider the implications of these findings for research and practice. Four super-ordinate themes were identified: ‘a shared history’, ‘negotiating the impact of dementia upon the relationship’, ‘openness and awareness’ and ‘shifting sands’. This synthesis contributes to an emerging field but also highlights gaps in current understanding of the impact of dementia upon relationships and in providing appropriate interventions. Implications for research and practice are considered.

Item Type: Article
Additional Information:

Staff and students at the University of Worcester have access to the full-text of the online published version via the UW online Library Search. External users should check availability with their local library or Interlibrary Requests Service.

Uncontrolled Discrete Keywords: family relations, dementia, Alzheimer's disease, qualitative research, synthesis
Subjects: H Social Sciences > HQ The family. Marriage. Woman
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Divisions: College of Health, Life and Environmental Sciences > School of Allied Health and Community
Related URLs:
Depositing User: Jenny La Fontaine
Date Deposited: 06 Jul 2019 17:56
Last Modified: 17 Jun 2020 17:30

Actions (login required)

View Item View Item
Worcester Research and Publications is powered by EPrints 3 which is developed by the School of Electronics and Computer Science at the University of Southampton. More information and software credits.