Large-scale Roll Out of Online Prospective Measurement of Mood Symptoms in Affective Disorders

Knott, Sarah, Gordon-Smith, Katherine ORCID: https://orcid.org/0000-0003-4083-1143, Forty, L., Craddock, N., Hinds, C., Wadekar, V., Bilderbeck, A., Saunders, K., Harrison, P., Goodwin, G., Geddes, J., Jones, I. and Jones, Lisa ORCID: https://orcid.org/0000-0002-5122-8334 (2016) Large-scale Roll Out of Online Prospective Measurement of Mood Symptoms in Affective Disorders. In: 18th Annual Conference of the International Society for Bipolar Disorders & 8th Biennial Conference of the International Society for Affective Disorders, 13th - 16th July 2016, Amsterdam, The Netherlands. (Unpublished)

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Abstract

Background and Aims: True Colours is an online prospective mood-monitoring system developed at the University of Oxford to assist local patients and clinicians with monitoring course of illness in bipolar disorder. We report our initial experiences of using True Colours for research purposes in the Bipolar Disorder Research Network (BDRN; www.bdrn.org), a large research network of individuals with mood disorders spread throughout the UK.

Methods: After initial piloting to ensure the practicality/acceptability of using True Colours within BDRN, we invited all BDRN participants (n = 7000) to participate in weekly True Colours ratings via three postal invitations sent over an 8-month period.

Results: Following the three postal invitations, 915 individuals have so far expressed an interest in joining True Colours, and, of these, 662 (72.3%) have registered. 32 of those who registered for True Colours (5%) have so far asked to leave the system. Positive feedback from participants has focused around the ease of use and convenience of True Colours and potential clinical utility of the graphical representation of weekly mood scores.

Conclusions: We have demonstrated that large-scale prospective mood monitoring for research purposes using a contemporary online approach is feasible. Challenges have included: (i) variation in participants’ technological ability; (ii) management of requests for clinical advice based on mood scores within a research setting; and, (iii) resources required to provide access and on-going support for participants using True Colours. We continue to expand recruitment to True Colours within BDRN, and plan to trial email invitations in the next phase of recruitment.

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