An Exploration of the Data Collection Methods Utilised with Children, Teenagers and Young People (CTYPs)

Background: The impact of cancer upon children, teenagers and young people can be profound. Research has
been undertaken to explore the impacts upon children, teenagers and young people with cancer, but little is
known about how researchers can ‘best’ engage with this group to explore their experiences. This review paper
provides an overview of the utility of data collection methods employed when undertaking research with children,
teenagers and young people.
A systematic review of relevant databases was undertaken utilising the search terms ‘young people’, ‘young adult’,
‘adolescent’ and ‘data collection methods’. The full-text of the papers that were deemed eligible from the title and
abstract were accessed and following discussion within the research team, thirty papers were included.
Findings: Due to the heterogeneity in terms of the scope of the papers identified the following data collections
methods were included in the results section. Three of the papers identified provided an overview of data
collection methods utilised with this population and the remaining twenty seven papers covered the following
data collection methods: Digital technologies; art based research; comparing the use of ‘paper and pencil’ research
with web-based technologies, the use of games; the use of a specific communication tool; questionnaires and interviews; focus groups and telephone interviews/questionnaires.
The strengths and limitations of the range of data collection methods included are discussed drawing upon such
issues as of the appropriateness of particular methods for particular age groups, or the most appropriate method to
employ when exploring a particularly sensitive topic area.
Conclusions: There are a number of data collection methods utilised to undertaken research with children, teenagers and young adults. This review provides a summary of the current available evidence and an overview of the strengths and limitations of data collection methods employed.