University of Worcester Worcester Research and Publications

Sustainability of Community-based Interventions for People Affected by Dementia: a Protocol for the SCI-Dem Realist Review

Morton, Thomas ORCID:, Atkinson, Teresa ORCID:, Brooker, Dawn ORCID:, Wong, G., Evans, Shirley and Kennard, Clive (2019) Sustainability of Community-based Interventions for People Affected by Dementia: a Protocol for the SCI-Dem Realist Review. BMJ Open, 9 (7). e032109. ISSN Online: 2044-6055

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Introduction With numbers set to increase globally, finding ways to better support people with dementia and their families is a matter of growing concern. Community-based interventions can play a key role in supporting people with early to moderate stage dementia postdiagnosis, helping delay decline and hospitalisation. However, provision of such interventions is fragmented, with significant gaps and no reliable funding model, hence innovative groups and schemes catering for a genuine need can struggle long term and frequently fold. Methods and analysis This realist review aims to expand our understanding of how best to implement and facilitate community-based interventions to run sustainably, focusing on contextually relevant explanations. We will gather and synthesise literature using a realist approach designed to accommodate and account for the complexity of ‘real life’ programmes, as implemented under different conditions in different settings, aiming to draw transferable conclusions about their sustainability that explain how and why context can influence outcomes. Our review will iteratively progress through five steps: (1) locate existing theories; (2) search for evidence (using Academic Search, AMED, CINAHL, EMBASE, MEDLINE, ProQuest, PsycINFO, PubMed, Scopus and Social Care Online, between May and September 2019); (3) article selection; (4) extracting and organising data; (5) synthesising the evidence and drawing conclusions. Data analysis will use a realist logic to explain what works, for whom, in what circumstances, in what respects, how and why. A stakeholder group will provide guidance and feedback throughout. Ethics and dissemination Ethical approval was not required. Recommendations drawn from results are likely to be of interest to a range of stakeholders including those commissioning, planning, running, supporting or attending such interventions, as well as policymakers, healthcare professionals and researchers. We will draw on the expertise of our stakeholder group regarding tailoring dissemination to each audience using a variety of materials, formats and channels.

Item Type: Article
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© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See:

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Uncontrolled Discrete Keywords: health services research, 1506, 1704, dementia, postdiagnostic support, psychosocial intervention, social medicine, old age psychiatry, organisation of health services
Subjects: R Medicine > R Medicine (General)
R Medicine > RM Therapeutics. Pharmacology
Divisions: College of Health, Life and Environmental Sciences > School of Allied Health and Community
Central Services > Library Services
Related URLs:
Copyright Info: Open Access journal
SWORD Depositor: Prof. Pub Router
Depositing User: Dawn Brooker
Date Deposited: 31 Jul 2019 09:29
Last Modified: 10 Aug 2020 14:42

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