University of Worcester Worcester Research and Publications

Using Social Worlds Theory to Explore Influences on Community Nurses’ Experiences of Providing Out of Hours Paediatric Palliative Care

Neilson, Susan, Kai, J., MacArthur, C. and Greenfield, S. (2013) Using Social Worlds Theory to Explore Influences on Community Nurses’ Experiences of Providing Out of Hours Paediatric Palliative Care. Journal of Research in Nursing, 18 (5). pp. 443-456. ISSN Print 1744-9871 Online 1744-988X

Full text not available from this repository. (Request a copy)


Background: Paediatric oncology palliative care in the community is rare and nationally there is
a lack of standardisation of out of hours nursing service provision.
Objectives: This paper seeks to explore influences on the experiences of paediatric nurses providing out of hours palliative care within the family home to children with cancer. The study used social worlds theory to aid identification and demonstration of the findings.
Methods: Twelve community-based palliative cases were purposively selected from children with cancer treated at one regional centre. Tape-recorded interviews were undertaken with 54 health professionals (general practitioners, community nurses and allied health professionals) involved in providing their palliative care and five facilitated case discussions completed. Data analysis
followed a grounded theory approach; chronological comparative data analysis identifying generated themes. Social worlds theory was used as a framework to examine the data.
Results: Nurses’ experiences are shaped by their social world and those of the nursing team,child and family and the inter-professional team providing the care. The lack of a formalised service, sub-optimal inter-professional working and impact of social worlds influence the experience of the nurse.
Conclusions: Social worlds theory provided a new perspective in understanding these experiences based within a paediatric palliative care setting, knowledge that can be used to inform service provision.

Item Type: Article
Additional Information:

Staff and students at the University of Worcester can access the full-text via the UW online library search. External users should check availability with their local library or Interlibrary Requests Service.

Uncontrolled Discrete Keywords: cancer, children and young people, nursing, palliative care, social worlds theory, qualitative
Subjects: R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology (including Cancer)
R Medicine > RJ Pediatrics
R Medicine > RT Nursing
Divisions: College of Health, Life and Environmental Sciences > School of Nursing and Midwifery
Related URLs:
Depositing User: Susan Neilson
Date Deposited: 15 Aug 2016 10:35
Last Modified: 17 Jun 2020 17:12

Actions (login required)

View Item View Item
Worcester Research and Publications is powered by EPrints 3 which is developed by the School of Electronics and Computer Science at the University of Southampton. More information and software credits.