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Exploring the Experiences of Community-based Children's Nurses Providing Palliative Care

Neilson, Susan and Kai, J. and MacArthur, C. and Greenfield, S. (2010) Exploring the Experiences of Community-based Children's Nurses Providing Palliative Care. Paediatric Nursing, 22 (3). pp. 31-36. ISSN 0962-9513

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Abstract

Aim: To explore the experiences of community children’s nurses (CCNs) and children’s palliative care nurses (CPCNs) who provide end-stage palliative care to children with cancer in the family home. Method: A qualitative approach was adopted. One-to-one interviews and facilitated case discussions were undertaken with 30 community nurses who had provided palliative care to a child or young person with cancer. A grounded theory approachwas used for data analysis. Findings: Because of the relative rarity of childhood cancer many CCNs and CPCNs engage infrequently in the palliative care of children or young people. This makes it difficult for them to develop and maintain knowledge and skills. There is a variation in the out-of-hours service provision available to families. Conclusion: Further funding is needed to develop teams of trained, experienced CCNs and CPCNs who can provide palliative care for children and young people 24 hours a day and 365 days a year. Keywords Community nursing, oncology, out-of-hours services, palliative care

Item Type: Article
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Uncontrolled Keywords: community nursing, oncology, out-of-hours services, palliative care
Subjects: R Medicine > RJ Pediatrics
R Medicine > RT Nursing
Divisions: Academic Departments > Institute of Health and Society
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Depositing User: Susan Neilson
Date Deposited: 15 Aug 2016 10:45
Last Modified: 15 Aug 2016 10:45
URI: https://eprints.worc.ac.uk/id/eprint/4767

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