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Layers of Listening: Qualitative Analysis of the Impact of Early Intervention Services for First-episode Psychosis on Carers' Experiences

Lavis, A. and Lester, H. and Everard, L. and Freemantle, N and Amos, T. and Fowler, D and Hodgekins, J. and Jones, P. and Marshall, M. and Sharma, V. and Larsen, J. and McCrone, P. and Singh, S.P. and Smith, Jo and Birchwood, M. (2015) Layers of Listening: Qualitative Analysis of the Impact of Early Intervention Services for First-episode Psychosis on Carers' Experiences. The British Journal of Psychiatry, 207 (2). pp. 135-142. ISSN Print: 0007-1250 Online:1472-1465

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Abstract

Background Early intervention services (EIS) comprise low-stigma, youth-friendly mental health teams for young people undergoing first-episode psychosis (FEP). Engaging with the family of the young person is central to EIS policy and practice. Aims By analysing carers' accounts of their daily lives and affective challenges during a relative's FEP against the background of wider research into EIS, this paper explores relationships between carers' experiences and EIS. Method Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS. Results Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers' emotions unacknowledged and compounding an existing lack of help-seeking. Conclusions By focusing on EIS's engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?

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Uncontrolled Keywords: EIS, Early Intervention Services, psychosis, young people, carers
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
Divisions: Academic Departments > Institute of Health and Society
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Depositing User: Janet Davidson
Date Deposited: 29 Jul 2016 14:22
Last Modified: 13 Mar 2017 12:11
URI: https://eprints.worc.ac.uk/id/eprint/4715

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