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Public Health Guidance to Facilitate Timely Diagnosis of Dementia: ALzheimer's COoperative Valuation in Europe Recommendations.

Brooker, Dawn ORCID: https://orcid.org/0000-0001-8636-5147, La Fontaine, Jenny, Evans, Simon ORCID: https://orcid.org/0000-0002-2919-8167, Bray, Jennifer ORCID: https://orcid.org/0000-0002-1315-7643 and Saad, K. (2014) Public Health Guidance to Facilitate Timely Diagnosis of Dementia: ALzheimer's COoperative Valuation in Europe Recommendations. International Journal of Geriatric Psychiatry. ISSN Online: 1099-1166

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Abstract

Objective: ALzheimer’s COoperative Valuation in Europe (ALCOVE) was a Joint Action co-financed by
the European Commission to produce a set of evidence-based recommendations for policymakers on
dementia. This paper reports on timely diagnosis.
Methods: Evidence was reviewed from scientific, policy and qualitative research. An online questionnaire
was completed by experts from 24 European Union countries detailing current practice. An iterative process
with people with dementia, family carers and professionals was utilised to develop recommendations.
Results: Advances in the technical aspects of diagnosis have changed what is understood by early
diagnosis. Although research into preclinical stages is crucial, diagnosing at these very earliest stages
is not recommended as regular practice. On balance, it is suggested that citizens should have access
to accurate diagnosis at a time in the disease process when it can be of most benefit to them. The term
timely diagnosis is used to reflect this. The diagnosis can help citizens and their families make sense of
what is happening and make lifestyle changes and plans for the future. The central principles identified
to maximise benefit and to reduce harm associated with diagnosis at an earlier stage included reducing
stigma about dementia; respecting the rights of the individual; recognising that how the diagnosis is
given will impact on subsequent adjustment and that post diagnostic support are required for the
person and their family. Detailed recommendations are provided for timely detection, the diagnostic
process, complex diagnoses, response to early cognitive changes and workforce.
Conclusions: The recommendations can be utilised at a local, national and European level to benchmark
progress.

Item Type: Article
Additional Information:

Early View (Online Version of Record published before inclusion in an issue)

The work was presented at an invited conference in Paris in March 2013, and a synthesis report was published as part of this event. The results and recommendations in the paper submitted here are also contained in the synthesis report, although the current paper contains more detail. The synthesis report and the literature review, and survey are available for download at http://www.alcove-project.eu

Staff and students at the University of Worcester can access the full-text via the E-Journals A-Z List. External users should check availability with their local library or Interlibrary Requests Service.

Uncontrolled Keywords: dementia, timely diagnosis, ALCOVE
Subjects: H Social Sciences > H Social Sciences (General)
R Medicine > R Medicine (General)
R Medicine > RT Nursing
Divisions: College of Health, Life and Environmental Sciences > School of Allied Health and Community
Depositing User: Simon Evans
Date Deposited: 10 Apr 2014 11:55
Last Modified: 19 Mar 2020 13:12
URI: https://eprints.worc.ac.uk/id/eprint/3055

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